Here is a helpful tip before I explain why today is going to be long day.
If you have kids then you have done the ER run with long hours in the waiting room to be triaged before going back to a room or curtain. Once back there you still have a long wait. I have been doing this ER run for as long as I can remember and there is nothing worse than a sick kid who is bored and doesn't want to wait to feel better. For this reason we have a hospital bag. What is a hospital bag you ask, its simple really you take a backpack that your kid isn't using for school, or you can buy one just for this. Inside the bag you have a few books (I have one for me just in case my son falls asleep while waiting). I suggest for the books that you pick some that they like but wont mind if its left in the bag for a while. Also switching out the books once in awhile will keep you from hearing "I don't want that one we've read it so many times already". For the younger kids put in a coloring book and a small box of crayons to keep them busy. Now that my son is older we bring a laptop with us also so that we can watch tv or movies on it. Lets face it there is not much on the tv for kids after midnight when they seem to get really sick. Again it works out great for me if he is asleep. Even though my son is 11 we bring one of the girls or all 3 depending on why we are going. (The girls are 3 stuffed puppies that are his safety net, the girls are always sick with what he has and has seizures just like him.) Along with a his small Pens blanket. Lately he has been bringing his penguin pillow pet named Fleury after his favorite Pittsburgh Penguin player along too.
Now on to why today is going to be long day. For starters I haven't slept yet, I tried taking a nap with my son earlier but Shye, wanted out just as I was falling asleep. Anyway, it started just before 0800 when my son woke up screaming from a migraine. So after a few hours of dark quite and medicine he fell a sleep. This is were my missed nap came in. After my son woke up he felt better and then it was outside to play chase me with Shye, and soccer with mom. But soon after he started to complain that he was feeling funny and that there were dips in the floor. Not even a minute after saying that to me he went white as a ghost and fell to the floor with his eyes still open. Of course shye, freaked out like she always does when he has a seizure. So I had to get past her biting me to get to him on the floor. Luckily this seizure was an absentee seizure or as I call it the "lights are on but no one home". Unfortunately, it was not the last that he would have today but it was the smallest in the sense of body movement. Then about 2200 I heard a loud thud in the bathroom, he had gotten up to use the bathroom when he had a grand maul seizure. The poor guy was flopping on the bathroom floor like a fish out of water for about a minute before he came to, vomited on me and pasted out. Where was Shye, during all this you ask, she was in my sons room with the door closed. He didn't want her to get out so he shut the door on her when he left. Since this last seizure was a big one I rushed him to the ER to make sure that nothing was wrong or that he didn't hurt his head from the fall. So, there we were sitting in the ER him hooked up to monitors and just waiting to see if anything else happened. After about 5 hours with no more seizures and no other signs we could go home.
Now that our trip to the ER is over I have to get ready for our trip to Children's hospital which is about 40 miles away. But its going to take me nearly 2 hours to get there with the morning traffic. Which I don't mind driving in bumper to bumper traffic (I know I'm weird that it relaxes me). One thing bugs me about it WHY THE HELL DO YOU HAVE TO STOP SO FAR BEHIND THE CAR IN FRONT OF YOU, THAT YOU CAN GET A TRACTOR TRAILER AND 2 CARS IN THAT SPACE!!!! Seriously, you wouldn't stop that far behind someone at a stop sign or light and you are not going to do it even if there is no one in front of you. So, why do it when you are going slower then a turtle. Back to his appointment later today it is one of the longer appointments that we have. Last month the doctor was so behind that my son fell asleep in the waiting room and then again in the exam room. By the time she go to him he was ready to go home and fought her on everything. I am just know that we are not going to get out of there before 1400 with our appointment time at 1100.
CYS was called the guy tried to take me son because he just ran my name and got the other me's criminal record. Apparently she hit a cop, shot at her boyfriend, made threats to people and had 10 DUI's. Since he came to my house I had all the proof that he wanted to show that I am not the other me. Shit my last ticket was in 1999 and the only time that I have been finger printed was when I worked for DOD. The guy tells me before he left that I if lied to him he was going to come back take my son have him adopted so I couldn't find him and have me locked up. Needless to say he never came back, he did call to tell me that the complaint against me for my son missing to much school was unfounded since I had doctors notes for everyday. And would you believe that after getting in my face calling me a lair, a horrible mom who needs to have her taken away and put in jail, he didn't apologize. I get that he was doing his job and making sure that my son was getting what he needed, but damn it after what he said to me he should have said something to me, instead he said nothing. Now if I would have treated him that way and yelled and threatened him he would demand an apology from me. I would have been happy with him just admitting he was wrong, but I got nothing. Back to registering for school after I prove that I am me I have to wait to see a special advisor because my son has special needs, so that I get into the classes that I want and need but with the instructors aware of his needs. All my class are going to be online which helps since my son goes to cyber school. This way I don't have to worry about either one of us missing classes because of his appointments or seizures.
Time to take Shye, out again and maybe get a nap in before my long drive and really long day.
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